Archive | April 2013

Mistaken for the Bride of Frankenstein

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Photo Credit: frankensteinhalloweencostume.com

You may recall a post I wrote last month about skin cancer and learning that I have been growing said cancer on my forehead: Skin Cancer, Too?  Really?!

Well, despite my attempts to delay the surgery I need to (hopefully) eliminate this cancer, the day of this unpleasant event is now upon me.

In a few short hours I will be headed to the hospital for chemosurgery / Mohs micrographic surgery with our area’s only chemosurgeon.

And I am biting my nails.  They’ve told me that I should plan to be there for anywhere from half the day to the entire day.  They won’t know how long until the surgery is underway and they can see how extensive the cancer is — and what will be required to close the area up.

Apparently I am supposed to be comforted by the fact that my surgeon is excellent at doing reconstruction and skin grafts.  Let me assure you that I am not.  I would rather have not known that he may need to exercise these talents with me.

I don’t know why I am so concerned about this surgery.  I’ve had more than my fair share of surgeries and procedures.  And most of them were far more invasive than what I expect this one to be.  I’ve been cut into so many times that if I lifted my shirt, you might mistake me for the bride of Frankenstein.

So this shouldn’t be a big deal in comparison, right?  (Well, that’s what I’m telling myself at least.)

And it’s for a good cause.  I am actively growing cancer on my head — I can see it growing from week to week — so I should want to get rid of it.

But I am still scared.

Maybe it’s because I’m a bleeder?  And I’m on a blood-thinning regimen.  Just the biopsies required to get this diagnosis were a clear sign that bleeding will be an issue for me.

Maybe it’s because they’ll have a scalpel touching my head and I don’t yet know how deep they’ll have to cut?

Maybe it’s because I’ll be awake and I’d much rather be asleep?

Or maybe it’s just because I am so tired of cancer and side effects and surgeries and procedures and my body is weathered and worn out.  And I just want to feel like a regular thirty-something-year-old with regular thirty-something-year-old problems.

Or maybe it’s just because no one likes surgery — big or small — and I am only human.  (Of course if I lift my shirt, you may think otherwise!)

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Photo Credit: mubi.com

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Weekly Photo Challenge: Up

The Daily Post’s Weekly Photo Challenge topic for this week is “UP.”

These photos were taken during a Fall trip to visit my dear friend Jin.  We traveled through NYC on the way home — the perfect place for “UP” photos.
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If you’d like to take part in a challenge yourself, just click on one of the links below.

~Thanks for visiting!~

http://dailypost.wordpress.com/category/photo-challenges/

http://dailypost.wordpress.com/2013/04/19/weekly-photo-challenge-up-2/

my suns blog

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[A Title & Post Written by My Son, M — all by himself!]

My mom has cancer.shes bin acting really tired.but I understand because she

has cancer.

I like watching movies with her and all that…

AND I love  going on vacation too.

my favorite place to go

 is florida.

sometimes I want my mom to play video games with me but she says shes to tired to play.I miss the old days.  🙂

And Tonight We Danced…

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breast cancer thirties 30s 30's cancerinmythirties.wordpress.com dancing kids twins

Tonight we danced…
You and you and I…
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We danced in the living room, between chairs
and beneath shiny blue paper stars and an off-white sky
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Some days I wonder when it will all end
Some nights I lie awake knowing it can’t last
And fearing the day when you will no longer have a Mom
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But for now, for tonight,
You are mine
And I am yours
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For tonight your giggles will echo as you step on my toes
And we will dance and twirl ’til our heart’s content
You and you and I…

Guest Post by Susan Vento, Wife of the Late Bruce Vento

Hello Loyal Readers,

I hope you will all take a moment to read the story below — and then go one step further and sign the petition that follows.

When Susan Vento, wife of the late Bruce Vento, a former U.S. House Representative, contacted me to ask for help with this important campaign, I had to take a few minutes out of my day to sign the petition and post her story.

I hope you will also take the time to read her moving story and sign the petition.

Thank you all — I am so fortunate to be a part of such a wonderful & supportive blogging community.

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My name is Susan Vento, and I am writing to you about a cause that is very close to my heart. On October 10th 2000 my husband, Bruce Vento, passed away. He was serving as a congressman for the state of Minnesota when he was diagnosed with pleural mesothelioma, a very rare cancer that is caused by asbestos exposure and kills 90-95% of its victims. Please read my post below to learn more about my personal story.

I Support Victims’ Rights: My Family’s Fight Against Cancer & Unfair Legislation

It was on a Saturday––January 29th, 2000 to be exact––that mesothelioma entered our lives. “Asbestos,” they told us, the name of the killer that would eventually take my husband’s life nine months later.

Like any story, I would like to start at the beginning because only then can you understand the meaning of the ending. My husband, Bruce, grew up on St. Paul’s East Side, the second of eight children in a second generation Italian-German family. He attended the University of Wisconsin-River Falls, working construction to put himself through college. He then went on to teach junior-high science in the Minneapolis Public School system and later was elected to the Minnesota House of Representatives in 1970, representing East Side St. Paul families. In 1976, he was elected to the U.S. House of Representatives from Minnesota’s Fourth Congressional District, where he served his constituents in the Fourth District up until his death, just barely 60.

He and I first met while Bruce was lobbying in Washington D.C. in 1980. Four years later, I started doing volunteer work in support of his re-election campaigns. Like Bruce, I was an educator, and I believed in his impact. He supported working men and women, our public schools, and those who are poor and homeless, those who do not typically have a voice in the political process. Little did I know that our love story would start in those campaign rooms, working together for a future we both believed in.

Our first date wasn’t until mid-April of 1995, where he took me out to a comedy club. I was 40 at the time, and hadn’t been dating much because I was more focused on work than anything personal in my life. It sparked the start of my life’s great love, one that I thought would last a lifetime.

In early January of 2000, Bruce left on a Congressional trip to Europe. Each night he called to check in, he kept talking about a shortness of breath and lower back pain. The morning after he returned to Washington, D.C., he went to the House physician, who immediately had him go to the hospital nearby.  They drew a significant amount of fluid from Bruce’s lung for testing.  The following afternoon, he received the call: he had lung cancer. I met him at the airport here in the Twin Cities that night, and we spent the weekend having the conversations you have when you’ve received news like this.  Bruce and I had his sons and their spouses over to share the news with them, and then we went to tell his parents––a most difficult conversation.

The following week, we went to the Mayo Clinic in Rochester, MN. After testing, Bruce’s doctor shared with us that he had mesothelioma. It was caused by asbestos exposure, which happened during Bruce’s construction work back in college. We had never heard of this disease let alone knew how to spell it. While the doctors took Bruce for additional tests, I spent a couple of hours in the hospital library, desperately searching for any kind of information I could find on this vicious cancer. Little was available at the time, so I came up with less information than I had hoped.

It was on Valentines Day that the surgeons removed Bruce’s lung, half of his diaphragm, and lymph nodes. When the toxicology reports came back, we found out that the cancer had spread to his lymph nodes. In April, he began several rounds of chemotherapy, followed by five weeks of radiation. All the while, Bruce continued serving his people from Washington. He never stopped fighting for that cause, that same vision that brought us together.

Since Bruce’s death, I have been a part of several efforts both in Washington as well as here in Minnesota to advocate for patients and their families. Too often, the corporate interests hold court and control the outcomes on much of the legislation being enacted, especially when it comes to issues like asbestos and mesothelioma. The opportunity to share Bruce’s story has been both healing and empowering. So many only know the word “mesothelioma” from the late-night cable advertisements and have not yet experienced it in their own lives.

I’ve met so many patients and families and have learned so much from their experiences. The “small world” connections have been stunning––Bruce’s nurse during his radiation was diagnosed with mesothelioma after his death and later died. My former teaching partner’s father died of mesothelioma, as did a former staff member from my elementary school.  The candidate who challenged Bruce in his last three, successful re-election bids for the U.S. House was diagnosed following Bruce’s death and died a few months after.

I’m doing this to honor Bruce’s legacy as well as to do what I can to help other patients and families protect their legal and constitutional rights. The Asbestos Cancer Victims’ Rights Campaign (ACVRC) is committed to providing a voice for patients and their families as Congress debates and makes decisions regarding legislation that would seriously erode our rights. While awareness and information surrounding mesothelioma has improved in the last thirteen years, we need to continue raising our voices. Starting with signing our petition, I encourage you to join our effort in whatever way you can.  With your help, we can take a stand. Together, we can work towards building a better tomorrow and truly make a lasting difference.

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There is something YOU can do to help. Recently, asbestos companies have been using their political influence to introduce a new bill. It is called the “Furthering Asbestos Claim Transparency Act” (FACT Act), and it will delay, and in some cases, deny justice and badly needed compensation to people suffering from asbestos-related diseases. I am a spokesperson for the Asbestos Cancer Victims’ Rights Campaign (www.cancervictimsrights.org). The ACVRC is a national campaign dedicated to protecting the rights of cancer victims and their families.  I hope that you will join our fight to defeat this unfair legislation. Here are a couple of simple steps you can take to make a difference:

1.    Sign the petition to stop legislation that threatens cancer victims!

Go to www.CancerVictimsRights.org/take-action/sign-the-petition/ and follow the instructions to sign the petition at the bottom of the page.

2.    Spread the word!

Share your thoughts on our cause and the protection of cancer victims’ rights with your blog audience. Place a link to our petition on your blog to allow your readers to sign and showcase their public support – every signature matters!

Thank you so much! Together we can truly make a difference!

Weekly Photo Challenge: Change

This week’s Daily Post Photo Challenge topic is change.  

There are few days as representative of change in a woman’s life as her wedding day.  These photos are from my lovely sister’s wedding.

 

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The Beautiful Bride & Groom

 

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A rainy wedding day… Two of my sisters & me…

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The Wedding Cake

 

As always, thank you for visiting.

If you would like to participate in a photo challenge, just click one of the links below:   

http://dailypost.wordpress.com/2013/04/12/weekly-photo-challenge-change/

http://dailypost.wordpress.com/category/photo-challenges/